FORT WAYNE, Ind. (21Alive) – It can sometimes be tough to talk about Down Syndrome, a genetic condition affecting 400,000 Americans.
That's why co-authors brain Skotko and Sue Levine teamed up for a workshop Saturday morning at Lutheran Hospital.
A group gathered to discuss the most commonly raised questions and concerns by adult brothers and sisters who have siblings with Down Syndrome.
Skotko and Levine use national research to tackle the tough questions about finances, living arrangements, guardianship options and lifestyle choices.
“From a very early age, brother and sisters are caregivers as well. They try to help out their brothers and sisters and make sure that they grew up and be supportive. On the playground they're looking out for their brothers and sisters and making sure others don't call them the 'R' word when describing Down Syndrome. As they get older they want to make sure their brother and sisters have friends and are integrated in their communities and continue to be an advocate throughout the rest of their life,” said Skotko, part of the Down Syndrome Program at Massachusetts Hospital.
The two have also authored a book together called "Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters."
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